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Qualitas Health > News > Autism Awareness in Australia: Understanding the Barriers and Building a More Inclusive Healthcare System

Autism Awareness in Australia: Understanding the Barriers and Building a More Inclusive Healthcare System

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Autism in Australia: Key Facts and Statistics

Approximately 290,900 Australians are diagnosed as autistic (1.1% of the population), up from 205,200 in 2018.

Autism is most commonly diagnosed in children and young adults, with 3.1% of those under 25 affected.

73% of Autistic individuals report experiencing a profound or severe disability.

Diagnosis is more common in males than females, with a 2:1 ratio.

People from culturally and linguistically diverse (CALD) backgrounds report greater difficulties accessing mental health support and therapy referrals, according to data from Autism Connect.

What Is Autism?

Autism, or Autism Spectrum Disorder (ASD), is a neurodevelopmental condition that affects:

  • Communication and social interaction
  • Thinking, behavior, interests, and activities
  • Sensory experiences and regulation

Common misconceptions include:

  • Autism is caused by vaccinations – false
  • All Autistic people are intellectually disabled – false
  • Autistic people cannot work or live independently – false

Navigating Healthcare: A System Full of Barriers

Despite increased awareness, many autistic Australians and their families still struggle to access the health services they need. The National Autism Strategy identifies three critical areas of concern:

  1. Health System Literacy: Information That’s Hard to Understand

A major challenge lies in the complexity of the health system itself. Many people don’t understand:

  • When to seek medical help
  • What type of professional to consult (e.g., GP vs. psychologist)
  • What a diagnosis means and what comes next

This issue disproportionately affects:

  • People from culturally and linguistically diverse backgrounds
  • People with intellectual or learning disabilities
  • Those in rural and remote areas
  1. Format and Accessibility: How Information Is Delivered Matters

Effective approaches include:

  • Using plain English in both written and spoken communication
  • Providing translated materials for diverse communities
  • Offering information in video or visual formats
  • Giving patients written summaries after appointments
  • Offering AUSLAN support or interpreter services where needed
  • Creating opportunities for patients to share their own health information ahead of appointments
  1. Affordability: A Barrier Too Many Can’t Overcome

Examples shared in consultation for the National Autism Strategy include:

  • A patient paying $975 for a psychologist appointment every two weeks
  • Another paying $795 for each GP home visit
  • A family choosing between paying for food or accessing healthcare

These challenges are compounded in rural areas where:

  • Bulk-billing GPs are rare
  • Specialist services are limited
  • Travel to cities for care adds further financial strain

Understanding the Autism Diagnosis Process

How to Prepare for a Better Healthcare Experience

Before your appointment:

– Write down your questions or concerns

– Ask the clinic for appointment details in advance

– Let them know if you need an interpreter or support person

During your appointment:

– Ask your provider to use plain language

– Request a written summary of the visit

– Bring someone you trust

After your appointment:

– Follow up with any questions

– Keep records

– Ask your GP about funding options

What Qualitas Medical Practice Is Doing

We offer:

– GPs who understand and support neurodiverse needs

– Clear communication and plain English explanations

– Interpreter and AUSLAN services on request

– Support with Mental Health Care Plans and referrals

– Personalised care that respects individual needs and preferences

A More Inclusive Future Starts Here

By improving health literacy, reducing costs, and offering tailored support, we can build a future where everyone has access to the care they need.

Book an appointment with your local Qualitas GP today and take the first step towards a more inclusive healthcare experience.


References

[1]. Department of Social Services (2024). National Autism Strategy Consultation Report: https://www.dss.gov.au

[2]. Australian Bureau of Statistics (2023). Autism in Australia: 2022 SDAC: https://www.abs.gov.au/statistics/health/disability/autism-australia

[3]. Autism Awareness Australia (2024). Understanding Autism: https://www.autismawareness.com.au

[4]. Autism CRC (2024). Report on research, co-design and community engagement to inform the National Roadmap to Improve the Health and Mental Health of Autistic People: Reimagining health services for Autistic people, their families and carers. Autism CRC.  chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://www.health.gov.au/sites/default/files/2024-07/autism-health-roadmap-co-design-project.pdf